Hi....
Well.....I just joined the forum last night, but see this as being a wonderful place in which to vent your frustrations and pain. If you are confident that your doctors are addressing your problems then the only thing you can do is work on how you cope with all of this. This is a trying time for you right now especially with young children to take care of. I only hope and pray that your husband is supportive and understanding, or that you have someone else who is helping you.
You were right in sharing here, for I believe that what people need more than anything when they're faced with something this horrible is for someone to witness their pain. And trust me I have had my share of pain through the years. I have learned though that how you cope emotionally can ultimately help with your healing process. And sometimes it takes as long as it takes to get over something like this, so please don't push yourself.
Make sure that you ask for help and get the rest that you need to heal properly.
I do hear your frustration and sadness about all of this and wish I could do more. I will keep you in my prayers and if you want to share more....feel free. Getting this stuff out will help more than you know.

Cindy