Sounds like you've found a good doctor there. One thing you should not worry about is ALS. It looks completely different from neuropathy. And another reassuring thing is that neuropathy will not kill you. It may hurt like hell, but it won't kill you, and will not likely totally disable you. Most people here are able to get some control of their symptoms, and many have found a cause which, when treated, lead to total improvement. Some of us have idiopathic pn, no known cause, and for us, many have just kind of stayed at the same level, a little worse or a little better over the years.

Please don't be afraid of pursuing a diagnosis. Your doctors might be able to treat you.

Are you getting medicaid now? Do you have any insurance now?