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Member
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Join Date: Apr 2007
Location: Atlanta
Posts: 344
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Member
Join Date: Apr 2007
Location: Atlanta
Posts: 344
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If I were you, I would look for another doctor. I know that is discouraging, after having gone to two neurologists already, but what you doctor(s) has said to you is very bad acvice and trivializes your pain. First of all, having your feet go completely numb is not a happy cure -- when a person's feet go completely numb it is very difficult for them to walk, and this isusually limited to short distances with a walker. And most people with small fiber sensory neuropathy suffer for years or a lifetime without the pain ever going away. Liza Jane is certainly right that there are those of us who get relief with treatment, either actual improvement to the neuropathy, or (more commonly) with the pain. For example, I use a medication called a Fentanyl patch. Fentanyl is a synthetic morphine that is given in a constant dose by keeping a patch on, but it is a very low dose -- it is not like taking a big huge pill of narcotics. This is commonly prescribed for chronic pain problems. But some doctors won't prescribe it because they are ignorant. Ignorant doctors and many patients fear addiction, but studies have shown that taking medicne for pain rarely results in addiction. Addicts are people who take narcotics to get a high, not to treat pain. Narcotics taken in therapeutic doses for pain do not make people high.
People with neuropathy have varying levels of pain from mild to intolerable. I do disagree with people who say that PN can not kill you. My pain is so bad, that when I did not have medication I thought about suicide every day. The medication has not stopped my pain -- I am still unable to tolerate exercise for my health -- but I am able to do many things that make me happy and enjoy life. For some people, measures other that medication can do this, as mentioned above, but for other of us, we need pain medication. Mine have never caused side effects that are worse than my PN pain.
I was never able to get treatment for my pain from the two neurologists I went to. My family doctor rescued me from certain suicide by prescribing the Lyrica patches. Some people find help from a pain center or a pain specialist. But don't let anyone trivialize your pain. It is so degrading. You have enough to put up with.
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