Marc has been complaining about how I act towards him when I am in severe pain. I get angry and I yell usually at him because he's there. This is horrible.
I suppose it talks of my inability to cope. Am I alone in being like this.

Marc also sort of disengages from me when I get to the point of severe pain. I have discussed with him That I do not think I am alone in doing this. I've tried to reassure him That when we come to Southern California he will see other spouses of thoracic outlet syndrome suffers And they too will confirm That this is a normal occurrence when we are in pain. [I hope I'm not wrong] It wouldn't be the first time!!

Spousal support is so important so I bought the invisible disabilities advocate Booklet for him so he can read and understand my world In some way shape or form .

It really hurts me to hurt him. So support is paramount to all of our coping. With no spouse I realized I would be lost. I told Marc this yesterday. I told him I didn't know how I would live without him to help me. All true, painful and true.

Much love to you all,

Victoria