Hi you guys! Sorry I have not been on my legs gave out Sunday Late afternoon or evening! It is so excaserbating they work then they don't just complete weakness and rubber. But guess what my husband was there shortly after it happened,he saw the devastation in my eyes and he put me to bed! Did I mention that we also have our baby grandson? He is a beautiful 13 month old boy!! His mother decided she could not provide for him and she left him with with us in our home. It is a very sad situation also but is another subject altogether. Well all of you guys have good suggestions and before I posted this morning I talked with my husband and explained what I needed from him. He said he would try harder to be supportive!! I am fighting for social security disability. I have an attorney and we just went to a hearing before a judge in Sep. The judge wanted more updating on where I am at in my Illnesses and so he is waiting for test results before he gives us his decision. I did try to get state medicaid but they don't give it to people unless you are pregnant or as supplement to medicare. I also have 2 sisters and 1 brother. I have a sister who came here to Montana to take care of my mom because I no longer could do it. She is getting ready to go back to Colorado at the end of this month. My other sister just took my mom back to Oregon so as to be there when she passes. My mom wants to pass on in her home town and there is most of her family there. I was extremely close with my mother before her stroke and it was really hard for me when she did not know who I was afterwards! I have learned to accept that though and it was kind of like I lost her when the stroke happened. It has prepared me in a way to say goodbye to her and we will really be together again in heaven! I don't know if that makes sense to you guys. I have a hard time wording things sinse my illness! Things come out kinda backwards when I write or try to explain things now. Well getting back to siblings, I also have a brother in Oregon but we are not close unfortunately.

Melody, I agree that stress does do horrible things to us. I know when I am under alot of it it makes my illnesses much worse. The spasms that I have seem much worse and the pain! I also agree that the medications would just put off having to deal with the reality of things also.

Daniella, we are trying to get some remodeling done on our home so we can sell it. We realize having a multi level home does not work for me with my mobility problems. I have literally been stuck up in my bedroom for long periods because I can't get down the stairs safely. Plus we have equity in our home and that is the best place to get some funding for doctors and test. It is just getting the house ready to sell if you know what I mean?

Dakota, you are so lucky also to have a supportive husband because men do think differently then us! It comes natural to women to be caretakers but for them we do have to do alot of communicating to help them understand what we need.

Aussie, I feel so badly for you! To have to go through what you are going through and to do it alone is very sad!! I can understand though because I have gone it alone myself. Maybe if you also sat him down and told him what you need.Do you think that maybe he would listen?

Lizajane, I saw this same Neuro I am seeing now like 3 years ago. The first time I saw him he did not take me seriously! It was this time after so much time had passed that he listened. I think it was seeing how much I had gone down hill since then. Also when he did the Neuro exam and asked me to do the foot to toe exam I almost fell over trying to do it. Also the test where you close your eyes, the doctor had to catch me because I did fall over! It is sad that you have to deteriorate like that sometimes before they will listen!!
I am really happy though that he is taking it seriously this time around!

Dan, I will have to check into the medicare billing deal. That is a really good idea! I think if it is a really good doctor that some would be willing to do that.

Julie