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Old 09-29-2006, 01:34 PM
Busymommie Busymommie is offline
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Join Date: Aug 2006
Location: Winston-Salem, NC
Posts: 116
15 yr Member
Busymommie Busymommie is offline
Member
 
Join Date: Aug 2006
Location: Winston-Salem, NC
Posts: 116
15 yr Member
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The last time her levels were checked the only thing that worried me was her co2. It was a little low, but not low enough to worry according to her ped.

It is just frustrating, period...

Shehas been through periods of increased seizures before and we waited it out. only one other time was it due to an AED, and that was resolved pretty quickly when she came off of it and onto something else.

As for the "huge" dose, she ISN"T taking it. I told the nurse I would NOT increase her back to a dose that was bothering her.

Anything Ri has ever been on needed to be at the high end for any sort of results. Topamax didn't very little for her until she was at 275, and even better at 300... 350 was just to much....

(sigh) It is not drastic enough to sit in the ER and risk catching some nasty virus only to make her seizures worse, at this point.
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Denae- Mom to
Riley (9)- Lennox Gastaut Syndrome & Charcot- Marie-Tooth
Brittany (11) a Prissy Princess
Sarah (14) Aspergers Syndrome
Victoria (16) Above Average Teenage sister
Jade (11) my niece, but now also my baby
Jacob (6) Possible Aspergers, but we have to sort through his anger/abandonment issues first
Jackson (4) The sweetest little guy you will ever meet.
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