Thanks Donna for telling me this. I would dread the testing but how wonderful to be able to talk to someone that already knows. I too get tired of trying to explain myself, it is just so hard to do.
I have also struggled with what "normal" is for some years. Mine was from jerking arms, head, legs, etc from my C-spine. Got it repaired. Now I have a different kind of what is normal supposed to be problem. Oh well, life is still good, just a little strange. LOL Gaye