Hi Carolyn,
Not sure if it could be dystonia, anyone else get dystonia in the lower back?
Do you normally get dystonia in say your feet, neck or shoulders?
I might be wrong but I think they're the most common parts to get it.
Pre DBS I'd get excruciatingly painful dystonia in the areas mentioned above but no not the lower back.
Hope it either sorts itself out or someone comes up with a solution!
Thankyou for your informative postings, I always enjoy reading them.
Cheers,
Lee