Hello Board folk!

I need opinions...So, after a few years of being mis-diagnosed with RLS, the recent conclusion earlier this year (based on excluding other things) has been that it is SFSN. EMG/NCS, MRI, blood tests all normal. Physical exam shows lessened pin prick sensitivity below the ankle. Temp test never done. Vibration response normal.

Pharmacutical-wise: I've been on lyrica 2x/day for about 6 months with good results. I also take 1 5mg Vicodin as needed for breakthru pain (which occurs approx 5 out of 7 nights a week). Considering that I went thru tons of meds to get to lyrica and the vicodin use was previously a lot more--I think this is great (only using about 5 Vicodin pills a week).

But (there's always a but), having no proof of disease is sometimes problematic for me. I see a sleep specialist because it appears I also have ideopathic hypersomnia, the attending physician seemed to think it was ludicrous that someone taking "narcotics" should be prescribed stimulants. Seriously, I would prefer to take no Vicodin, pal! It's not like I get 'high' or am addicted to them (as time has proven).

Do you think I should seek the punch hole test with my neurologist? If it comes back negative does that necessarily mean I don't have SFSN? I just want to feel a little more secure with the diagnosis...my odyssey has been so windy that I almost feel like given a new symptom, or the meds becoming less effective, that the diagnosis may change. The doctor (and I) was positive it was RLS, who's to say the second diagnosis is really correct either?