Hi All.

Two weeks ago, Alan and I attended the monthly Neuropathy meeting in NYC. The doctor there (if any of you read my posting on this), well she spoke at length at neuropathy, the various causes and CIDP.

I distinctly asked her "Is CIDP, inherited, and does my son have to get this?" She looked at me and said: "NO". So naturally I breathed a sigh of relief. Now I don't know why I did that, given the fact that his mother had Guillian Barrre and, even though, a gazillion doctors and specialists have told us that Alan's neuropathy had nothing to do with his mother's GB, and even his present neurologist said it's not linked, and she's the one who said "you have CIDP, because there was protein found in your spinal fluid", when I asked her if Alan's mom's GB could be linked to Alan's condition, she said "not likely".

So just now, I read an article that indicates the researchers have found a gene linked to CIDP.

Here's the article. Perhaps many of you have seen this before!!!

http://www.gbs-cidp.com/readarticle.php?article_id=21

So if I'm told that my son won't inherit neuropathy, and this doctor said "no, your son won't inherit neuropathy, then why, all of a sudden, am I reading an article that says "there's a gene" for CIDP.

I am extremely confused. I know most things in life are genetic, I understand this. But I've been told for 18 years that Alan's neuropathy had nothing to do with his mom's GB, and, well, can you see where I am confused here??

Thanks much,

Melody