Hi Cassie,

I can feel your pain and frustration. I have had severe leg pain, bladder problems and now terrible lower back pressure which led me to see 5 different specialist. After countless MRI's and tests they found a tarlov cyst which is compressing my nerves. None of my doctors can give me any advice or even talk to me about Tarlav's disease. I sent my MRI to Dr. Long at Hopkins and I am hoping for a quick response. I am taking Lyrica and Celebrex (just started Lyrica last night). I am 41 yrs old and have 3 children. My life seems to have changed overnight. I was at the gym 3-4 times per week, active socially and very involved with my kids activities. Now I can stand or sit for about 2 hours and then I must lay down. I would love to connect with you for support and to share info.

I did read something about Lysine and alkalinity of the body - have you heard anything about that?

Pam