......that it could be a good idea to have the skin punch biopsy done to verify SFSN. I am no expert and don't know much about whether a negative skin biopsy always remains negative as symptoms progress further or whether the skin biopsy can change. Sounds like you've had this for a while so hopefully any changes would already be evident.

It must be somewhat confusing for you having your diagnosis changed from RLS to query SFSN. Have you had a change of doctor to precipitate this clarification?

I agree with you when you say that "having no proof of disease is sometimes problematic for me". I am still undergoing diagnoses for cause of my PN but at the moment I feel like it is not a legitimate condition when it hasn't got a label. 'Illegitimate' is certainly the way one can feel when one is being treated by the medical system, especially when you are only experiencing symptoms but expressing no provable signs of a condition because of negative test results.

Hope you can resolve this for your peace of mind!