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Grand Magnate
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Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
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Grand Magnate
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
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My first OBVIOUS sign was numbness up to my chest, that quickly led to (temporary) paralysis. I had other signs before that, but they were easy enough to ignore. I recovered relatively well, and had nothing major for another 12 yrs.
As karilann said, they want to see two episodes, seperated by time, and a certain size/shape/location of lesions on an MRI. I would ask for a copy of my MRI report (from the hosp or where-ever it was done), and look for wording that might indicate demyelination vs other reasons for lesions.
A spinal tap is NOT necessary, and very invasive, IMHO. I am biased as I had a terrible type with mine (which is quite rare, but a REAL posibility).
Good luck,
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas .
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