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Old 10-30-2007, 08:42 AM
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indigogo indigogo is offline
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Join Date: Aug 2006
Location: "all the way over on the West Coast"
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15 yr Member
indigogo indigogo is offline
Senior Member
indigogo's Avatar
 
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
15 yr Member
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Rick - I agree. I asked the question because more and more, from an advocacy perspective, I believe the best use of my time is to push education and awareness of the need for exactly what you describe as "state of the art" Parkinson's treatment. My neuropsych was the one who talked me into the true value of early retirement - the stress of working longer would have killed me faster than the PD.

The cool thing about the clinic I go to is that they are actually trying to figure out ways to "spread the gospel" - one big hurdle is the lack of scientific evidence that their approach works (can't move docs in a new direction unless you can "prove it") So they are working to design outcomes based studies in order to do just that.

It's a long process; I'm glad they are practicing what they know in their guts to be true in the meantime.
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“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
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