Oh, I'm not giving up.
Ron and I have been discussing this. I agree with him that certain things can widen the BBB at times, and that this allows more toxin (antibodies!) into the brain. But I would argue that the symptomatic ups and downs are much more easily explained by varying levels of antibodies in the blood.
One of my "side theories" is that narcoleptics have a much more permeable membrane. I can correlate my ups and downs directly to what I eat, down to the hour.

Carey has convinced me to go to the Seattle conference next week and I will pester some of the researchers up close and in-person.