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Old 09-29-2006, 08:16 PM
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Chasesmom Chasesmom is offline
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Join Date: Sep 2006
Location: Memphis, TN
Posts: 7
15 yr Member
Chasesmom Chasesmom is offline
Junior Member
Chasesmom's Avatar
 
Join Date: Sep 2006
Location: Memphis, TN
Posts: 7
15 yr Member
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Ya know - I am not saying this is what it is - but CHase had a increase in seizures and it was caused by the topamox - he was in metabolic acidosis that we wouldn't have known about until the drew labs in the ER - It's a side effect of topamax that I'd never been aware of - I was bummed since it had been a good drug for him - but after that whole experience he can't go back on it. So far we are having the best luck with depakote, clonazepam and zonegran. But that's this week (ya know how that goes) HUGS to you both - seizures SUCK!
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Dana - Mommy to Chase (HIE, PVL, Mixed Seizure Disorder, Sleep disorder, Gastroparesis, BP lability, GERD, GJ Mickey, TPN/Lipid dependant, Multiple CVL infections, CP-double hemiplegia, and our reason for living)
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