I wonder if you can contact any of the top drs by email, or the one you will be going to, {does that one have your records already?}
and ask what they recommend for vascular TOS swelling?
I don't know if they would or could do that without seeing you or your records at least??

Your local dr or the other surgeon has no suggestions??

There's no expert/advanced PTs/chiropractors in your area to get an evaluation or suggestions from?
You should be able to ask for an evaluation & opinion only and no treatment at this time.
you'd probably have to take copies of your tests results and pertinent info

Do you think it is more blood flow {veins/arteries}or lymph flow {more all over} swelling?