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Old 11-02-2007, 10:23 AM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default A proposal for the advocate groups

Something occurred to me the other day that could yield some important data at very little cost if the big pharmacies would help out.

We have very little in the way of data about the geographic data regarding how PD is distributed around the world. But, at least in the US, that data is available in the form of sales of Sinemet and the dopamine agonists! The problem is that it is in the computers of places like Walgreen's and CVS pharmacies.

That data would be a gold mine. Not only could they tell you how much was sold in Topeka, they could tell you how much was sold in a given neighborhood on a particular day of the year between the hours of 1:00 AM and 1:05 AM! Talk about detail.

With some correction for population mobility and such, we could have some extraordinary data to plot against everything from wind patterns to milk consumption.

Paula et al, do you know anyone with enough clout? Maybe with the initials "MJF"?
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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