I took only the latest reports from all of the doctors. And I had to have CD's of MRI's etc. Films wouldn't do. Any abnormal tests are important. I've emailed Liza Jane and I'm hoping she's not feeling too bad to answer. But please fill out the liza jane spread sheets. They are so very important.

Glenn will look at this too. And I'm hoping Mrs. D. But please do the spreadsheets and get letters from any doctors you can to help with referrals to other dept. Put your records together in a loose leaf binder divided by types of problems. Like all the neuropathy related test results in one division, and all the rheumatology test results in another. Use the yellow dividers. It will make it so much easier. I made two copies of everything. One for the doctors and one for me to keep. Keep your originals.

I found that if I wanted to see another doctor in a different dept, all I had to do was ask. But it will all hinge on whether or not the doctors had an appt. space available. If you can, try to see Dr. Michelle Mauermann in the neurology dept. She was wonderful and is familiar with seronegative Sjogren's. And be sure to see someone in the optical dept.

Do you have the slides of your lip biopsy? It might save you another one. But don't be afraid of them at Mayo. They have people who do nothing but this and are very specialized. As far as a place to stay. I'll pm you with the places I found.

Good luck and God Bless!!!! I've waited for this for you. I so hope you get an answer. I am not sure about mentioning the LTD case to them. What do the rest of you think about it?

Billye