Thread: Tysabri info from ECTRIMS
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Old 09-29-2006, 10:41 PM
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SallyC SallyC is offline
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SallyC SallyC is offline
In Remembrance
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Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
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Quote:
Originally Posted by mexigrl View Post
There were some pretty postive results from the ECTRIMS conference on the long term (3 yr) efficacy of Tysabri. I have been major relapse free for the years since my one year on the Tysabri trial. The results I read today would seem to say that this could be due to the Tysabri dosing from a few years ago. Does anyone find that plausible?

I've been scared of going back to it - for fear of what else it might do to my system. I'm amazed that the results could last for this length of time. Could that just be the pharma companies marketing??

Thanks

Laurianne
I remember Dee reporting that she was on Tysabri and Avonex for 3 yrs, during the trial and dropped Avonex and continued on, until they pulled it from market. In the next year she had one flare after another and was misirable. She is going back on Tysabri at the end of this month.

Good luck on continuing with your remission.
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