TheresJ...looks like I've got some 'learnin' to do, I'm all ears!!
I know very little of what you're describing about B6...
I'm just begining to understand about the B12 suppliment.
I'd love to have gotten Homocystein and MM acid levels testing back then, but remember...
my doctors only beleived I needed to just take more of the anti seizure meds for my moderate level of Peripheral Neuropathy to mask the pain..
not to cure me or find the cause of this! Would have been too easy, cheeper too!
How obsurd!
Why on earth they never considered this after removing several feet of my small intestines...the ONLY place besides sublingual that absorbs B12!
Just having a long history of gastro intestinal problems, Crohns disease and Irritable bowel syndrome...is standard protocol to give B12 injections.
But did they? Did they even consider this when I asked, then pointed out I'd had a 3+ year bout of severe anemia where I needed blood transfusions every other week...My God!...My GOD!...what school did they go to?...were they even coherent when they took the antiquated subject of the nutrition, vits and supps and Krebb cycle classes? Passed out drunk maybe?...or perhaps they wanted to watch me suffer!
Just unbeleivable this got missed in me after seeing so many doctors...specialist...Neurologist! OMG!

Here's something I also wonder...people with Fibromyalgia have fatigue...could it be because of the irritable bowel one often has when they have FM, could they be B12 deficient thats causing their fatigue?
I wonder how this ties into fatigue in FM?!?!
I am willing to do just about anything to get this information out there!
No one should suffer a moment longer!
So I'm passionatly serious about making this known.
Blessings, Cheryl
Like my motto goes:
No well behaved woman ever made history!
PS...Does anyone have any ideas how we can make this subject a little more known than it is?
Perhaps lets get together write a book on this, get on Oprah show?
Write our senitors to get a bill past where labs change the standards they've got so wrong?
There is a way....we just have to find it!...we must!
I promise I won't do anything crazy...I'd never want to discredit anyones hard work in all this.
But I gotta tell you...my story alone is worth a few "rounds" with some naysaying rolleyed Neurologist on Maury Povich show!