Hi frogga..
This doctor sound like he plans on taking good care of you.. I know what you mean by him knowing how ill you are.. it is so hard to get good care when your doc dosn't understand how bad off you are, the baclofen pump sounds promising.. I so hope it helps you Rosie you realy deserve a break.. the ketamine is also very promising but far less accessable *sigh*.. I realy hope it works for you, when's it look like this pump might happen?.. it would be so good for you to loose some of that dystonia so you can get back some mobility.. have they looked at botulism shots or is that the botox?

Big hugs bud painfree ones