hello d'sue
I am so sorry for all you have been suffering
we do have a forum here for chiari malformation where you may be able to find some useful information.
http://neurotalk.psychcentral.com/forumdisplay.php?f=71
we also have a chronic pain forum, one for medications discussions, and others too that may meet your needs
here's the main index to all our forums if you need it:
http://neurotalk.psychcentral.com/index
I do hope you will find a doctor who can correctly determine why you are suffering this pain and be able to help you. Maybe other members here can help point you in the right direction. I do hope so.
welcome to the NeuroTalk community
Cheri