Could you give us a little history on yourself? It would help some of our "experts" in this disease to know how to guide you. All of us have histories and some of us have studied extensively the cause of the diseases we have. I myself suffer from Sjogren's Syndrome and Rheumatoid Arthritis. Both can cause neuropathy. Can you tell us some of the testing etc.

How did your PCP present your case to Mayo? Did he just tell them he'd like an appt. for you or did he give them complete medical history? Testing etc. It really makes a difference how the case is presented? Do you have a copy of his referral? Perhaps it should have been sent to the Rheumatology Dept instead of the Neurology. Or even to the Pain Clinic there?

Billye