I think I will have to vote with Melody on this one. From what you all have posted, it makes me feel frustrated that there doesn't seem to be any way to help relieve your suffering... It saddens me to see that my online friends experience life like this. I wish so much that there was an answer for this.

Your pain descriptions are very real to me, because of the examples you use to describe how you experience your pain. To me, this gives meaning to your written word and I can imagine how this must feel. Unfortunately, I find most doctors can't seem to identify with the examples... I find the "mask" goes up...

Cathie