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Old 09-30-2006, 06:26 AM
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KTM5665 KTM5665 is offline
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15 yr Member
KTM5665 KTM5665 is offline
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Join Date: Aug 2006
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Quote:
Originally Posted by Chasesmom View Post
Ya know - I am not saying this is what it is - but CHase had a increase in seizures and it was caused by the topamox - he was in metabolic acidosis that we wouldn't have known about until the drew labs in the ER - It's a side effect of topamax that I'd never been aware of - I was bummed since it had been a good drug for him - but after that whole experience he can't go back on it. So far we are having the best luck with depakote, clonazepam and zonegran. But that's this week (ya know how that goes) HUGS to you both - seizures SUCK!
thats very common with tsome kids.particualry if they are metabolic issues ivolved, or underlysing kidney diseases involved.
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~Alicia~who feels that four kids with a mitochondrial disease is like patching the Titanic with a bandaid at times, but I say.."SHUT UP, Sit Down and ROW"...
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