I have a friend whose 14yo daughter had to have the surgery by Dr Ahn in Los Angeles. She also had the veinous type- with the hand that went suddenly purple. She came through the surgery after about a week of downtime, and you'd never know there was anything wrong with her now.

I am sure you are scared, as anyone would be when having their child go through surgery. I was scared witless myself, but the experience wasn't really too big of a deal, a week or so of severe pain, then slowly it got better, and now i hardly notice. (i had surgery on left sid in may and right side in august)

Veinous type can be more directly life threatening (hence the need for surgery), but not nearly as long term debilitating as Nerve compression type.



I am sure your little boy will be in good hands. Dr Freigschlag came from UCLA where Dr Ahn and several other world experts worked on the development of TOS protocol. I second the idea of a second opinion, but I would not fear going to see Dr Frieschlag.

best of luck to you and your little boy, please give him a big hug for us.

Johanna