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Old 11-08-2007, 10:28 PM
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
LizaJane LizaJane is offline
Member
LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
Default always something exotic

My latest health update: When my sinus doc took swabs during my last infection, one month ago, the lab found organisms they are calling "acid fast".
Apparently, these are extremely hard to grow out, and Quest and Mayo have been trying to grow them for a month. They aren't growing, my doc says, because I had so many other bacteria that keep killing them off. So Mayo is sending them to someone in Texas who seems especially skilled at growing them.

Meanwhile, my sinus guy gave me a long talk on this. Even though they only saw a few of these, he says, it's very significant. There shouldn't be ANY. He's seen this in 30 patients, and all but one ended up being treated with THREE ANTIOBIOTICS. He's talking with a bunch of other experts, and so far they're all saying the same thing; THREE. Even though I'm actually feeling fairly well, sinus wise. I mean, for me.

He says this could have been the cause of all the infections I've had---that this could have been there 10 or more years, inflaming the mucosa just enough for other organisms to find a better home.

Anyway, one of the antibiotics is Cipro, which gives me neuro symptoms. Without a quinolone, he'd recommend intravenous. All this seems to me from outer space. So I asked him to call my neuro to see if there's any quinolone that would be less neurotoxic. In the meantime, I'm still on the Ceftin I've been on for 4 weeks already, which has helped a lot.

He says this is NOT tuberculosis, so I don't have to worry about that.

Yah. Just want I want, more exotica.

G'night Folk.
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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