I'm new, I suffer from mitochondrial cytopathy (myopathy?). I think my mother siad its respiratory chain deficiency type 2 & 4...but don't quote me on that. Never really cared much in the past exactly waht was wrong - I know what I can and can't do, when I ache and hurt, so why bother with details? I think now I want to know a bit more, and just be with like-minded people. It can be hard having something rare - people stare at me blankly when I explain what's wrong with me. Didn't realise exactly how rare it was!