Greetings Antonina
I recommend the Jack Miller center at the University of Chicago. I went to a bunch of the wrong doctors here in Chicago (podiatrists, orthopedic specialists, chiropractors, acupuncture, etc) who gave me all kinds of illogical explanations for my symptoms and no recommended treatments other than foot surgery. When I asked each one if I should see a neurologist, I was told, "no, not necessary." Finally I just decided none of them were making any sense and I went searching on my own for a neurologist which led me to Jack Miller. I picked a name from the list, called for an appointment on my own despite having no referral, and got in after about a 3-4 month wait. The neurologist I got is great, very caring, very knowledgable, and very up on the latest research being done including that at Mayo. I can't say I have the magical treatment that I might have wished for, but I believe I got a thorough bunch of tests and as accurate as possible diagnosis, given the fact I have an idiopathic auto-immune type neuropathy. The one problem I can see for you is that the tests were conducted over a several week period which would make it difficult if you were coming from out of town. The reason is that the test results of one test would lead her down a particular path of investigation that suggested the next batch of tests. Unfortunately, the bottom line, however, seems to be that the only thing all those tests do for you is give you a name to your condition. There's still not much effective treatment and I certainly don't see any possibility of getting better, only worse at varying rates of speed. Mine is "slowly progressing" whatever that means.
Good luck to you.