I had one doctor who insisted that my muscle shakiness and balance problems were "muscle guarding". It went on for months and just got worse and worse. After I left my pediatric doctor who said that, I found a great experienced neurologist who said I was suffering from severe tremors. Search for tremors on google, and you should be able to find some information and see if it fits what Ali is going through. I shake all over and sometimes my limbs jerk suddenly. I still cannot walk unassisted but I have gotten somewhat better with Baclofen to calm down my muscles. I know Ali was on Baclofen before, but perhaps she needs a different dose or another muscle relaxant?

Hope this helps you. Many ((pain free hugs)) to you, Ali.