Thanks Vicc
As I said in my PM I really do apologise if I upset you about the comments on Alisons Physician. I am certainly not angry with you at all. We are all entitled to our own opinions and at the time I would have believed anything the Consultant told me as I was hanging onto his every word believing he could put the disease into remission within a matter of weeks / months
As time has gone on and from bitter experience with regard to the treatment regimes at our local Childrens Hospital I now realise these people are totally out of their depth. They only see 2 cases a year and cannot provide any accurate statistics on remission rates, duration of symptoms etc.
It has made me realise that the support groups and the wonderful people on there are much better equipped to advise us on the best ways forward.
I should have realised that PT would not help Alison as it was intensive PT which caused the ankle to go into eversion in the first place, but these people do their best to convince you that they are much more knowledgeable than any of us mere mortals ever will be
Any advice you could give would be most welcome as I am aware that you have researched this subject extensively and will probably have more idea of what is happening in Alisons case that her own Consultant
Please do not think that I am mad at you, I really do respect your opinion, especially on finding a way forward through the minefield that is the UKs wonderful NHS system where we are TOLD what we treatments we can have and who we can see and cannot have the freedom of choice to select the best possible treatment without a lenghty fight with our Primary Care Trust
I always read your posts with interest and as a very concerned parent would love to hear anything you have to say with regard to Alisons situation, particularly the problems seen immediately after the bier block
Many thanks
Andrea