Well now I am a little freaked out. Ada my heart goes out to you. You had me in tears, not only because I am scared but because you had to go through all of this. It really does sound the same though. It does filp-flop between left and right arms but is predominantly in my left arm. My neck is making me crazy with the spasms and cramping. I am reminded of this as I type now, my whole left side from my fingers all the way up my arm to my neck want to pull in. What is going on? Do nerves really have that much control over muscles? Or is it the other way around? I am now wondering about my back and shoulders if they aren't burning because of muscle tension. Could be, I'm not sure anymore. I will have my doctor take a look. My PTs are useless to me now.

Yesterday at physio I noticed that by the time we got into the education session, 3 1/2 hours into physio that my toe nails were grey and the palms of my hands moddled. By the time I got home later everything was back to normal, well as normal as can be. Does anyone get that?


The heart racing seems to come with spurts of energy. It isn't me doing things that causes it to come on. Like if I am at the computer it will start and then I can't sit still anymore. It is different from the nausea that I was getting before. I am thinking that is stress related because if I get too worked up about something, being kept in a situation and not being able to get away from it, like being in physio and them not understanding the level of pain I am in and not being able to do anything about it nor leave to get away from them. That kind of thing.

I was looking up some things on Fibro and it says about headaches and dry eyes. Before I started on the gabapentin I was getting horrible migranes and constantly putting eye drops in. My right eye was also getting red a lot but I thought it maybe alergies, strain or dryness. It still gets red once in a while now and a week or so ago I had dry eyes again but never thought anything of any of it until I was reading about Fibro. It says though that you have to have the symptoms three months before it can be diagnosed at best. Is that true? My arms though really do at times feel exactly like the pain around my original site so I don't know. I don't know anything any more but I will ask my doctor to consider this when next I see her.

I just can't get over the burning in my face. I had forgot about it for a while last night before going to bed, then when I put my face into the pillow!!!!!! That was unpleasant! Good thing for fuzzy soft blankets. I managed with a corner of my blanket over my pillow.

I hope the neurologist is thorough but not crazy long term with testing. He is recommended by a doctor that has some understanding of CRPS. So? Next week seems so far away to start walking the path in search for more answers.....I will keep you updated as things progress.

Thank you everyone. I am really glad to be here and sorry that you are all here and, at the same, time happy you are....TTL J