I watched that tape all the way through. She did a very good job of explaining what it is and what she went through in simple terms.

I wonder if she knows what remission is. I would think that is what is going on with the girl. If she injures herself again will it come back out.

Ali, I do believe it can be put into remission and believe me it's not a one day, one week, one month, or one year task. It took me and my Dr. about 6 years to get me there.

That Dr. reminds me so much of my PCP who I consider one of my best friends and Bill just loved him. He wears very colorful ties. On the 25th of every month he wears a Christmas Tie and can tell you how many days there are until Christmas. One year Bill got him this tie in Ky. with women in short Santa outfits dancing and I swear he wears it. He wears Disney ties, you name it. There are Drs. out there like she met. You just have to keep looking for one that cares. A lot of them are from the old school but we do have some younger ones out there that do care. You just have to keep looking until you find one that wants to help you. When I first got sick in 87 it took me 3 years to find my PCP. The man learned about RSD to help me get through it and sent me out to the right Drs. to get me the help I needed.

If a person could have seen me in 98, they would have thought I would be dead within a year. My friends were worried sick about me.

The reason I am telling you this Ali, is that I want you to understand that you can get better and there is a light at the end of the tunnel.

One thing I tell people is to stand up for yourself. I have had Drs. drop me for telling them what I think, some admired me for it. I saw over 50 Drs. maybe 100 in my qwest to get well. I would have to go through my records. My caregiver put them in year order and believe me the thickest is 98 through 2004. Of course I don't have them all from the years back to 87 it seemed a hard time for me even without RSD. Back to the subject, don't stick with one Dr. or one Hospital just because you live close to it, just because you like the Dr., that don't always matter.

You will get better Ali, it just is going to take some time.

Debbie, I hope you are doing better. That was a great tape for anyone. Kids or Adults. Thanks for it.

Ada