Thread: Info Needed
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Old 11-13-2007, 05:55 PM
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default It really is crappy--

--that your husband was misdiagnosed like that, especially as an anti-MAG (and anti-SGPG) antibody titer should be performed on anyone with symptoms of sensory neuropathy.

Unfortunately, anti-MAG tends to be among the more recalcitrant of neuropathies; research is ongoing as regards immunodulating treatments, but these, of course, have their own problems.

Take a look at:

http://www.neuro.wustl.edu/neuromusc...imdem.html#mag

And, come on over to the neuropathy forum:

http://neurotalk.psychcentral.com/forumdisplay.php?f=20

--at the very least, there will be much empathy and numerous suggestions for symptom mitigation.
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