hello Hejhog, Corky gave good advice and like her I also welcome you here. BUT VERY VERY sorry it has to be over such nasty pain tho. I really think the correct meds and doses will be the thing that helps for you...once you find the right med. are you seeing a pain doc ? they help also.
as for taking meds when ya cant touch lips and mouth can barely open.... MAYBE I can help with that ... as having to take huge horse size pills when my jaw was wired up I had to break them up and do 1 of two things either shove them in between my wires or break and mush them up in some type of mushy food (applesauce,icecream, soupy mashed potatos) that I could suck threw a straw of corse your tongue can actuly be used in place of your lower lip . that is what I have learned anyhow. I use my tongue like that alll the time to eat and drink and the like.
I hope you find a great med and get controll over this. many many low pain wishes Hjehog. and of corse I do hope your neuro that you will be seeing is the best ever superstar TN specialist and things improve instantly for the best!
Peace
BMW