Dear Antonia;
If you contact Johns Hopkins, don't mention your fibro dx. They denied me on this although I told them it was just one of several misdiagnoses. Mayo also refused me but finally accepted me but I have to wait until January w/ Central Pain Syndrome. I don't know the cause but since one of them could be neurotoxicity due to a drug 2 & a half years ago, they originally denied me.
My symptoms have continually gotten worse while going from Dr to Dr, hospital to hospital & not getting any answers. Now I'm just trying to survive 2 more months, which seem like an eternity w/ this pain & other symptoms. I wish you luck.