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Old 11-15-2007, 03:30 AM
JohnstonJ JohnstonJ is offline
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Join Date: Nov 2007
Posts: 1
15 yr Member
JohnstonJ JohnstonJ is offline
New Member
 
Join Date: Nov 2007
Posts: 1
15 yr Member
Default Hello

Dear Doris, and Jean,

My 16 year old son currently has tremors and may have rapid onset dystonia parkinsonism. He is currently trying levadopa/carbidopa. As any concern parent I was hungry for information which is abundant. Perhaps this is something you already know since the post is old, but, I thought I would post a reply anyway.

Your search for a neuroprotective agent like coenzyme Q10 is something the NIH exploratory trials in parkinsons has completed a set of Phase II trials on humans. C Q10 and three other compounds were tested. The compound that is going on to a Phase III (1.7k people with confirmed PD) trial is creatine, while they did not find as high a merit in continuing C Q10.

If your doctor hasn't seen these reports you might want to share them with him. You may qualify to be part of the Phase III study of creatine even if you are on levadopa/carbidopa while the Phase II trials were strikely for newly defined PD patients.

http://www.parkinsontrial.ninds.nih.gov/netpd-study.htm

Or if you just want to consider using it yourself under your doctors supervision the same medical grade solution used in the trials is available from Avencia:
http://www.neotine.com/

I was quite encourage to see the level of world wide research and doctors working on solutions for PD.

God Bless,
Jim
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