Well, our genetic is stumped and was very honest in telling us she doen't know what to do next. She contacted another doctor at Maryland University and asked her to see us, but that doctor said no, that she didn't feel like she could offer us anything either. So, our doc called a Dr. Andrea Gropman at DC Children's and they said they would see us but it would be after the first of the year before we could get in. So, anyone ever seen Dr. Gropman?

She's a neurologist, but does metabolic stuff too. Our doc wants us to see someone who can look at the whole picture of the kids, not just our neuro looking at neuro stuff, and her looking at genetics.

The doctor who wouldn't see us did say she would put together the information on the kids and circulated it around her contacts.