Hey Ali my ankle does thay too,, it started out just in an L position with alot of muscle tension from the lateral muscle below my knee.. I manage to relax that some and now my big toe wants to point down and other toes up.. causes a twisting in my foot similar to yours.. my swellings not so bad though you need to keep those legs elevated as much as possible and higher than your heart alot.. it has helped me alot.

Andrea my RSD may have spread origionaly from a too vigorus physio therapy, but the therapist decided I needed DEEP tissue massage to combat the hard swelling, but she did her best to stick her thumbs into my shin bone from the back of my calfs .. it caused my RSD to flare and spread nasty. On the other hand I have heard many storys of remission with just PT I realy don't know what to think anymore.. I know this dosn't help much, it is just such a rotten nasty condition for any of us let alone a kid.

Physio seems to help alot when it is done right.. so many of these procedures done to help us have actualy caused more problems.. starting back when the ice was origionaly applied. Mabie talk to some of whom it has helped and find out exactly what exercises helped.. and talk to those that had bad experience and find out what not to do. Because we do have to continue to exercise and to bear weight on the RSD limb acording to everything I have read, so try to find a routine that she can work with at home starting with baby stretches of her limbs in all directions.. I do exrecises every day to keep my dystonia and tightness from getting worse and especialy so I dont hurt mysely if I overextend myself accidentaly.

Use it or loose it I tend to think, but go easy.. baby steps..

big hugz,
Sandra