Dear Antonia:
When you re-submit to Mayo, make sure neither you or your doc goes back more than 2 years. Keep your symptoms as recent as possible. Once there, if something farther back is the cause, they can find it. However, if you tell them ahead of time that you suspect it's more than 2 years old, they won't even look at you. I guess they figure if it's more than 2 years old they can't do anything about it so this will affect their success rating. I believe this may be the real reason behind the Johns Hopkins refusal also though they used a questionable fibro dx as the reason. You would think that the longer you have suffered the higher you would rank on needing relief but they must figure we can handle it so why bother! I'm not handling anything, only enduring. Before this, I suffered w/ RSD in both legs since 2001. I can't feel my RSD anymore because this pain overwhelms it. The NIH says there are no known meds or treatment! Opiates have no effect at all! I've already been through the SCS & pain pump w/ m RSD so neither are an option. Good luck to you. My prayers are w/ you.
Gramps