If docs/you think some of your pain is myofascial, there are a lot of bodyworkers in NY who do work. When I entered into the "healing" phase of dealing with my pn, I found a PT who does myofascial release, and her work, to me, accounted for a large part of my improvement---Besides working out the trigger points in a way that lasted, I think it relieved pressure on nerves, and pressure on the blood supply to nerves, so that they could utilize the oxygen and nutrients in the blood to heal and grow. Currently I see a feldenkrais worker, who has done amazing things for my back pain. Along the road I've gotten help of varying degrees from acupuncturists (for muscle pain), yoga, (again, I think it increased the blood supply). I've tried out craniosacral therapy (awful name for something that is a very gentle bodywork). I find that NY has so many alternative healthworkers that it's possible to discover things that help here that others aren't as fortunate to have available.

For you, I'd suggest the myofascial release as a start. If this started with the chemotherapy, that might really help the nerves get a chance to heal.

I know you're focussed on mayo, and getting clearer medical answers, so these ideas may not meet you where you are now, but file them away---there may come a time.

And oh, I agree with Gramps--keep things simple and current for Mayo.