Junior Member
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Join Date: Nov 2007
Posts: 43
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Junior Member
Join Date: Nov 2007
Posts: 43
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Nice to meet you and great post there wakegirl! I agree with you 100%. Thanks to people like you, others here and the web I am beginning to understand more about physio for CRPS/RSD.
coachvand and Daniella. I would love to try the pool. I have heard it is wonderful and great for those with lower RSD/CRPS. Hopefully this new place will have the pool.
The RSD/CRPS is starting to wear me down emotionally and mentally. I still have yet to have someone actually expain anything to me. I me, about me and what is going on with me. My physiotherapists told me to come to them when I was in pain so they could SEE and understand.....had expressed my opinion to them about that one (every day lately my left wrist wants to just drop. I don't know why or what is causing it but it gets painful and then just wants to drop. urgh...). I think I also mentioned that here also, about not being able to SHOW her things because it isn't something she can see and that is why she thinks it isn't there. Though she is suppose to be the expert! Anyways, I digress.
So, physio is now the following:
Wearing runners (yesterday was first time and my doing) HURTS LIKE A B%^#$ard! But I did it and am going to keep trying to do it.
20min treadmill
Squatting with a ball behind my back and standing on a half moon ball thing
leg presses on a machine
Adductor/abductor pulls with a rubber toob
Obstacle course
more stretches (about 5 types of stretches)
Repeat as many times as can within 3 1/2 hours
30min-45min of one-on-one for
desensitization with cotton balls and macaroni and manipulation stretching
Did I mention yet, I hate this place?
So, I am suppose to go to for an assessment at this other clinic next week. It is a day and a half meeting with everyone there - doctors, pts, neurologist, psychologist, etc. As part of my recovery team they review me and my meetings with them and see if they can help me and if I am a good candidate to get into their program. I was told that on average their programs last about 6 weeks but I think this is just an intake person and doesn't really know for sure what CRPS is.
Can anyone tell me how long a person should expect to be in pt when they have CRPS, early stage and good ROM? Basically if I can get my strength up and get desensitized I should be good to go. That's what I am thinking but no one can tell me anything. What is the average? Even with good ROM and maybe poor-good strength? What is to be expected? Does exercise - stretching and weight bearing activity for a person with CRPS in the foot (still possibly in feet and neck/face/head) - make CRPS go into remission? Oh, plus desensitization 4x week. How long can desensitization take? I mean really, I can handle quite a bit one day but the next I am upset or something and everything drives me off into the deep end.
Like I said. I am down and out this week and having a hard time trying to pick me up again. I am tired, learning sleep does not equal actual quality sleep and that is stacking up on me. I keep getting told, you can't hurt yourself doing anything here. Sure, okay whatever. They have asked me to explain to them what 'over do it' means and how that is possible. Can anyone help me here with that one? How can I explain it to them in a way they might be able to understand? They seem to think that if I am hurting it is just because of not using a certain muscle group or....they have a reason for everything and only when I tell them, not I actually didn't do that today or that at all, I get, well I don't know you must have done something because you can't over do it or hurt yourself with what we have given you.....ugh. Like I said. I am tired. Help me out if you can. Thanks. J
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