Hi Dave,
Whenever I hear of people with terrible pain that is not diagnosed I can only tell you about my experience. I had excruciating pain that no one could dx for years and it turned out to be Lyme Disease. I was also told DDD but, it should not be causing the type of pain I was in. People don't know Lyme Disease can affect the nervous system and any other system in your body and cause a myriad of terrible symptoms.

Here is a link to a paper on Lyme Disease by a doc who has been treating it for something like 25 years. Look at the list of symptoms. Someone handed me that list of symptoms years ago and I was astounded at how many I had.

http://www.ilads.org/burrascano_0905.html

I wish you the best and I am sorry for what you are going through. I hope you have support via your family, friends and medical community.

Diandra