Dahlek; I'm from the Chicago area & have been treated(?) by some of the best doctors in their field. However, during a clinical trial in 2004-05, one of them made a huge mistake which almost cost me my life. This mistake & the coverup of it has prevented me from receiving proper care, as well is most likely the cause of my recently dx'd CPS. Even the NIH admits there is no treatment for this condition. However, I have secured an appt at the Mayo Clinic to rule out any treatable causes for this condition.
My recent dealings w/ Mayo & Johns Hopkins, and not CPS, is what brought me to this thread. However, as talk continued, the subject went beyond helping Antonia securing an appt w/ Mayo. Soon talk was about RSD, the SCS & infusion pump. I only brought up CPS again when Kebsa wrongly referred to it as CRPS. This also led to me relating my experience about asking for a double amputation since her doctor had performed an amputation on her. I would have much rather stuck to helping Antonia get help than opening up about a condition I know no one understands since many neuros don't understand it yet. There's alot more to CPS than PN pain as it not only uses the peripheral nerves to inflict pain & other sensations. This is another reason I tried to avoid bringing it up on this forum.
Pain is pain & suffering is suffering so I feel for everyone who is in pain & pray they find relief. If you go back farther than the last post or two, you will see how I tried to avoid all this. I was just attempting to help someone get into a hospital, which is why she started this thread. I pray you have a pain free weekend.
Gramps