Thanks for the thoughts..

I have not considered the CMT affecting her hearing, although I know it can, just haven't thought about it. She failed a hearing test about a year ago, but when we went to the audiologist her hearing was fine. I *think* the reason she failed was lack of understanding on her part of what the nurse was asking her to do. I read all I could at that time and came across several articles mentioning hearing loss and CMT.

I just wonder what "ringing" would feel like to a delayed child? Sort of like the "itchy" feet that led Dr.Parrott and her ped to investigate and dx the CMT.

The last Email from Dr. Boyd suggested that we get a baseline for the school year then load her up on gluten and document the results. So, once again let the experiment begin.

I asked Dr. Parrott about hear ears hurting and he didn't really know what to tell me, but I asked really leading that I thought it had something to do with the massive amount of Topamax she is on (now she is up to 350mg a day)
So as soon as the peds office opens bak up from lunch I am going to call and see if we can get in and talk to them about it.