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Member
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Join Date: Aug 2006
Location: southern Calif
Posts: 221
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Member
Join Date: Aug 2006
Location: southern Calif
Posts: 221
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My Experience
I have had the swelling above the collarbone for several years now.
This is a serious symptom. When Dr Ellis would see it he would tell me to really take it easy as this is I think he said, something about vascular compression.
Mine is there all the time but is worse when I'm flared.
I have met maybe 10 people with tos and they don't have this swelling. Be careful.
Do your arms swell? Be very cautious about swelling.
BE SURE TO ADVISE YOUR TOS EXPERT DOCTOR ABOUT THIS SYMPTOM
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