sweettheresa,
FYI:
I was told once, long ago, to think of a "syndrome" as an intermediate diagnosis. It doesn't tell you what's causing your condition, it's just a name for a collection of symptoms without a clear origin.
You'll be in a constant battle until you find someone who can objectively identify the origin of your symptoms.

For me, that was one of the expensive MRI/MRA/MRVs that identified an abnormally large(3x) insertion point of the anterior scalene muscles on both sides. There
s a whole waterfall of complications from that one anomaly that could explain every one of my symptoms.