I know it has been along long time since i have posted.... I had a block down over 3 months ago.... It caused an incrediable flare... Found out i was allergic to it... GREAT ONE THING AFTER ANOTHER... The flare lasted 2 months... I am finally out of intense horrible pain 24/7 to just horrible pain.... The cold weather here in MN is really rough on me .... I wear a glove every where LoL ... Its a new fashion statment... I have also gained 30 pounds... BOOO to that.... Also the meds they have me on have put me in a 24 hour coma... I am up for about 4 hours a day.... The RSD has moved to the left side of my face and i am starting to have pains in my left arm... very scary for me... Lets hope it just stays to once and awhile...
Sorry if i sound a bit down but i am... Its been rough on top of all this my parents are going through a terrible divorce... And at 22 years old i am fileing for social security....
For those of you that dont know me... I have RSD in the Right and Left side of my face for my eyes down the Right side of my neck, right arm, and hand. I also have TOS from an artery perspective on the Left and Neurginic on the Right...
On the upside i have missed all of you and i am excited to get back to posting.... Forgive me for my spelling mistakes... I hope all of you are doing well... I have really missed all of you....
Now on to the question part...
There is something wrong with me.... This may sound crazy but i swear i am not crazy.... so you know when you think in your head just thinking about anything right.... so today for example i was thinking about a light to light a candle my rsd hand started making the motion of lighting it with my hand.... Or stiring soup i was thinking about what kinda spoon i wanted and my brian sent some kinda signal to start strying with my RSD hand.... But i was stiring and lighting nothing it doesnt make any sense to me and its happeneing a whole heck of a lot and i think i might be losing it why would my rsd hand make motions i dont wanna be making.... Does this happen to anyone else or am i losing it.... Its like my brain is misfireing... EVEN MORE! I dont get it...
Please dont think i am crazy i am very confused.... and wondering if this is just a nother crazy thing that happens with this stupid condition .....
Just a bit more information hopefully it more clear with the info below
My body does those wierd ticks and movements but this is just a bit different... Like i was thinking about lighting a candle with a lighter... i hadnt yet got up to do it but while i was thinkgin about it.... and my hand mad the lighter motoin the up and down like lighting but not really.... My brain is doing a very strange thing .....
hope this makes more sense
Thanks for any advice you guys have to offer... Hugs and much love J!
