I hate it when I forget to ask two of the major questions I wanted to ask, but this time I did. I got so wrapped up in what he did say I forgot to ask about the sleep issues and about the increase in those left sided seizures.

Dr. Parrott lowered her VNS back down, I let him know that anytime she gets swiped and is conscious it hurts, he had no problem in dropping her output a little bit. What I also forgot to tell him was that I felt like that particular setting was partially responsible for the enourmous increase in seizure activity. But it is down now so we will see.

Her Topamax will stay at 350mg a day... I had hoped he would reduce it a little, I am worried about her NOT sweating, and the acidosis, she is still teetering at a low level.

We talked about her regression and he seems to really feel like it is due to "trauma" or "stress"... the only stress in the last month is school starting. He asked about car acciddents, parents fighting, loss of a pet, -no, no, and no.. There is nothing, the only thing that would support that theory is school starting, but she has been pretty excited about going back. So I don't buy the stress or trauma theory. She went through a regression about 2 years ago and he suggested the same stuff, I stand by blaming it on seizures just as I do now.

He suggested we have neuro psych testing done to see what is going on in her brain. So we sit here waiting for the appointment day and time.

I know that all of us want to know what our childrens potential is, so I asked what I should be expecting and that I felt part of her behavior problems are due to expectations that are to high or are to low. If I know developmentally right where she is then we can as a family adjust our expectations. He said the neuro psych could give us some insight.

Questions-

*what is neuro psych?

*what do we do with the results? What does it tell us?

*can it help determine where her seizures are affecting?